Tag Archives: papilledema

What it all comes down to is that I had to make my own jello.

No time for pleasantries.

– Remember when Penny was in the hospital in August and I was all cryptic about what was wrong with her? That was because I didn’t want your reassurances. I know, that makes me sound like an asshole. But the thing is, I had (and have) genuine concerns, and sometimes a person just needs to worry them through without being told “oh, my aunt had that and she’s fine so obviously your kid will be fine!” Anyway, we worried through it all, and now I’ll tell you – Penny has vesicoureteral reflux – or VUR – or kidney reflux. And we’ve gone ahead and scheduled her for surgery for July 5th. It was just one of several possible options, but it was the best option for us. I think. I’m pretty sure. I mean, logically, I’m sure.

BUT SHE’S SO TEENY AND SHE’LL BE HAVING SURGERY OH MY LANDS YOU GUYS.

This is how I intend to distract you from the impending lack of content.

– Okay, remember when I was in the hospital and you were a total jerk about it? Well, I went (or more like, had Phil take me to) the ER because I was dealing with insane vertigo. More than dizziness. I mean the whole world was just whipping around me. It was so miserable. Nonetheless, I was still surprised when I was admitted to the hospital. They made me use a walker and wouldn’t let me pee by myself. Honestly, if I had blogged it in a timely fashion, it would have been some hilarious stuff. In a sad-for-me kind of way, but that’s usually my best stuff. I want you to know that it bothers me that I just ended two sentences in a row with the same word, but I just sat my kid in the middle of the floor with a whole cheeseburger and some french fries so while normally anal about such things, it’s a bit low on my give a damn chart at the moment. Just want you to know that I know.

Moving on, I had a CT scan and an MRI and both were perfectly clear, which is why I didn’t feel the need to alert any of my east coast family that I was in the hospital – I mean, come on. So they could worry over nothing? So I would have to call them multiple times a day to update them on my nothing? I told Phil that if it had turned out to be a brain tumor, he could call them. It didn’t, so he didn’t. Long story short, my mom threatened the shit out of him when we were in Pennsylvania for Penny’s birthday.

Internet, I need your honest opinion on this. Is it my job, as a 30 year old lady, to inform my family, on the other side of the country, of all of my medical issues? Some of them? Where’s the line? Colds? Fevers? ER trips? Broken bones? Admissions? How many days? Keep in mind that YOU CAN’T DO ANYTHING from across the country and also family across the country wants CONTINUAL UPDATES from the person WHO IS SICK and DOES NOT WANT TO UPDATE. Seriously. What is an adult’s duty to family when it comes to medical issues, disclosure thereof?

So, the vertigo would have remained a mystery, had the neurologist not arrived right when a ripping headache that the floor doctor refused to treat in case it would mask symptoms was about to kill me. He quickly diagnosed vestibular migraine, which you can Google if you want, and then you’ll know exactly as much as I do, which is about nothing. When I got out of the hospital, the dizziness and vertigo took so long to fade I was resigning myself to the fact that I was going to be desperately clinging to walls for the rest of my life like all of the other sad stories I had managed to find online. Then… it was gone. Mostly. Most of the time. Lots of headaches and some mild dizziness, but no big episodes.

I don’t want to say a lot about vestibular migraines, because as of right now, I don’t have a lot of information. When I was looking for information myself, all I found was horror stories or just more people looking for information themselves. So. Nothing like that from me. I will say that my neurologist is going to be running a couple more tests and as of right now, thinks I’m an excellent candidate for migraine management with medication, so I’ve started on Topamax. I’ve taken it in the past and I know it’s a brutal medication, so we’ll have to see if the benefits outweigh the drawbacks. I have high hopes of no headaches. Well, fewer headaches, since Phil has no plans of moving out.

AAAHAHAHAHA GET IT? PHIL IS MY HUSBAND!

BUH DUM CHING!

– Remember all those times you told me, “You know, you really should go to the eye doctor, and you should let the eye doctor look in your eyes, and also you should do the puff test?” Well, I don’t like to do any of those things. I like to order my glasses online and never discuss it with anyone, ever. But I unfortunately have birthed a violent hooligan who slaps my $8 Zenni Optical frames off my face on the regular and they finally gave up the ghost on Saturday night, when Phil and I were supposed to be having a real live adult date while my mother (who flew back from Pennsylvania with Penny and I under the guise of helping me since Phil had flown back a week early but UNDER THE REALITY of soaking up my adorable child) had the only kind of grandparent-grandbaby bonding time that really counts – the kind where the parents are nowhere to be seen.

I would have loved to order from Zenni again, but with the whole headache mess, I couldn’t deal with being glassesless for any length of time and thus had to deal with the OPPRESSIVE NATURE of shopping for glasses in the real world, where they refuse to just GIVE YOU SOME and instead insist on peering straight into your head.

And you know what? Go ahead and say you told me so. Just get it out of the way. Because guess what? The doctor looked in there? AND SOMETHING WAS WRONG. He referred me to a specialist for papilledema, which as I basically understand it, means my eyeballs are going to explode. But that’s not the CRAZY part.

Like any normal person, before calling any specialist, I of course went home and googled (this was yesterday). This papilledema is caused by high pressure inside your brain bag, and you know what one of the main causes of THAT is?

TUMOR.

Except? I had a CT and an MRI just a couple of weeks ago and there WAS no tumor.

Obvious conclusion?

THE FULL BODY SCANNER AT THE AIRPORT GAVE ME A TUMOR.

(Please note: no tumor has been confirmed and is, in fact, only suspected by the part of me that is convinced that everything from an earache to stubbing my toe is probably caused by a tumor, but when you think about it, what other conclusion could there be?)

There was going to be more here today, including some deeply philosophical questions about leaning your seat back on airplanes, but guys – I am not even shitting you right now – I just got back from urgent care and I have strep throat.

I have crazy migraine managed with the medication from hell, exploding eyeball most likely caused by the naked cancer box at the airport and NOT EVEN FUCKING WITH YOU STREP THROAT.

Here’s my current favorite picture of my baby.