What it all comes down to is that I had to make my own jello.

No time for pleasantries.

– Remember when Penny was in the hospital in August and I was all cryptic about what was wrong with her? That was because I didn’t want your reassurances. I know, that makes me sound like an asshole. But the thing is, I had (and have) genuine concerns, and sometimes a person just needs to worry them through without being told “oh, my aunt had that and she’s fine so obviously your kid will be fine!” Anyway, we worried through it all, and now I’ll tell you – Penny has vesicoureteral reflux – or VUR – or kidney reflux. And we’ve gone ahead and scheduled her for surgery for July 5th. It was just one of several possible options, but it was the best option for us. I think. I’m pretty sure. I mean, logically, I’m sure.

BUT SHE’S SO TEENY AND SHE’LL BE HAVING SURGERY OH MY LANDS YOU GUYS.

This is how I intend to distract you from the impending lack of content.

– Okay, remember when I was in the hospital and you were a total jerk about it? Well, I went (or more like, had Phil take me to) the ER because I was dealing with insane vertigo. More than dizziness. I mean the whole world was just whipping around me. It was so miserable. Nonetheless, I was still surprised when I was admitted to the hospital. They made me use a walker and wouldn’t let me pee by myself. Honestly, if I had blogged it in a timely fashion, it would have been some hilarious stuff. In a sad-for-me kind of way, but that’s usually my best stuff. I want you to know that it bothers me that I just ended two sentences in a row with the same word, but I just sat my kid in the middle of the floor with a whole cheeseburger and some french fries so while normally anal about such things, it’s a bit low on my give a damn chart at the moment. Just want you to know that I know.

Moving on, I had a CT scan and an MRI and both were perfectly clear, which is why I didn’t feel the need to alert any of my east coast family that I was in the hospital – I mean, come on. So they could worry over nothing? So I would have to call them multiple times a day to update them on my nothing? I told Phil that if it had turned out to be a brain tumor, he could call them. It didn’t, so he didn’t. Long story short, my mom threatened the shit out of him when we were in Pennsylvania for Penny’s birthday.

Internet, I need your honest opinion on this. Is it my job, as a 30 year old lady, to inform my family, on the other side of the country, of all of my medical issues? Some of them? Where’s the line? Colds? Fevers? ER trips? Broken bones? Admissions? How many days? Keep in mind that YOU CAN’T DO ANYTHING from across the country and also family across the country wants CONTINUAL UPDATES from the person WHO IS SICK and DOES NOT WANT TO UPDATE. Seriously. What is an adult’s duty to family when it comes to medical issues, disclosure thereof?

So, the vertigo would have remained a mystery, had the neurologist not arrived right when a ripping headache that the floor doctor refused to treat in case it would mask symptoms was about to kill me. He quickly diagnosed vestibular migraine, which you can Google if you want, and then you’ll know exactly as much as I do, which is about nothing. When I got out of the hospital, the dizziness and vertigo took so long to fade I was resigning myself to the fact that I was going to be desperately clinging to walls for the rest of my life like all of the other sad stories I had managed to find online. Then… it was gone. Mostly. Most of the time. Lots of headaches and some mild dizziness, but no big episodes.

I don’t want to say a lot about vestibular migraines, because as of right now, I don’t have a lot of information. When I was looking for information myself, all I found was horror stories or just more people looking for information themselves. So. Nothing like that from me. I will say that my neurologist is going to be running a couple more tests and as of right now, thinks I’m an excellent candidate for migraine management with medication, so I’ve started on Topamax. I’ve taken it in the past and I know it’s a brutal medication, so we’ll have to see if the benefits outweigh the drawbacks. I have high hopes of no headaches. Well, fewer headaches, since Phil has no plans of moving out.

AAAHAHAHAHA GET IT? PHIL IS MY HUSBAND!

BUH DUM CHING!

– Remember all those times you told me, “You know, you really should go to the eye doctor, and you should let the eye doctor look in your eyes, and also you should do the puff test?” Well, I don’t like to do any of those things. I like to order my glasses online and never discuss it with anyone, ever. But I unfortunately have birthed a violent hooligan who slaps my $8 Zenni Optical frames off my face on the regular and they finally gave up the ghost on Saturday night, when Phil and I were supposed to be having a real live adult date while my mother (who flew back from Pennsylvania with Penny and I under the guise of helping me since Phil had flown back a week early but UNDER THE REALITY of soaking up my adorable child) had the only kind of grandparent-grandbaby bonding time that really counts – the kind where the parents are nowhere to be seen.

I would have loved to order from Zenni again, but with the whole headache mess, I couldn’t deal with being glassesless for any length of time and thus had to deal with the OPPRESSIVE NATURE of shopping for glasses in the real world, where they refuse to just GIVE YOU SOME and instead insist on peering straight into your head.

And you know what? Go ahead and say you told me so. Just get it out of the way. Because guess what? The doctor looked in there? AND SOMETHING WAS WRONG. He referred me to a specialist for papilledema, which as I basically understand it, means my eyeballs are going to explode. But that’s not the CRAZY part.

Like any normal person, before calling any specialist, I of course went home and googled (this was yesterday). This papilledema is caused by high pressure inside your brain bag, and you know what one of the main causes of THAT is?

TUMOR.

Except? I had a CT and an MRI just a couple of weeks ago and there WAS no tumor.

Obvious conclusion?

THE FULL BODY SCANNER AT THE AIRPORT GAVE ME A TUMOR.

(Please note: no tumor has been confirmed and is, in fact, only suspected by the part of me that is convinced that everything from an earache to stubbing my toe is probably caused by a tumor, but when you think about it, what other conclusion could there be?)

There was going to be more here today, including some deeply philosophical questions about leaning your seat back on airplanes, but guys – I am not even shitting you right now – I just got back from urgent care and I have strep throat.

I have crazy migraine managed with the medication from hell, exploding eyeball most likely caused by the naked cancer box at the airport and NOT EVEN FUCKING WITH YOU STREP THROAT.

Here’s my current favorite picture of my baby.

47 thoughts on “What it all comes down to is that I had to make my own jello.

  1. drhoctor2

    Hot damn, Kelly…you are having the worst possible medical “luck” at the moment. My sympathies.
    Hate surgery for little kids. HATE it. My third had to go in for descended testicle right about Penny’s age and that was AWFUL for me..no complications..had to be done..best choice etc etc ..doesn’t matter..it’s hard. Here’s hoping to a quick resolution for her and a quick and full recovery for both of you.
    All your pictures of Penny are my favorite..I’ll admit the side eye pool shot is
    extra favoritable lacking only..ummm I don’t know maybe some sort of animal in the shot…like say SHELDON???

    drhoctor2 Reply:

    UNDESCENDED..UN…the mental image I just gave myself of a testicle so descended as to need actual surgery ?? Bleccch…

    Sam Reply:

    But the mental picture was awesome if you’re me.

  2. Veronica

    Holy shit, gal pal. It’s a good thing you have those “adorable Penny” intervals, because that’s a whole hell of a lot. Do you often just look at adorable photos of your baby at particularly crappy intervals of your day? I feel like you probably should. And I should. And you could trademark some sort of device that shoves cute pictures in your face in order to stave off the crazies. Or we could go in halvsies and market it together? Consider it. I’m thinking it would include a robot arm a la Inspector Gadget.

    TJ Reply:

    I AM picturing it!

    Veronica Reply:

    I’m thinking the hand would be one of those white gloves, like Mickey Mouse hands, but we can debate that in our first business meeting, if you’d like.

  3. BKC

    Oh hello! Penny is freaking adorable. The winking picture, with the yellow dress? I am dying of teh cute.

    I know nothing about any of those medical conditions except strep, so I offer you a hearty, “Ugh.” As for informing your family: I kind of had a hissy fit that nobody told me my grandmother was in the hospital after a heart attack (three thousand miles away), but for all the reasons you described I decided it didn’t really matter as long as she called when she was out. I don’t think you have to tell anybody anything unless you’re going under anesthetic. That seems like a reasonable line, yes?

  4. MegglesP

    Ok, a few things.
    1. I can’t get over those damn pictures. Please send me one. Kthx
    2. Topomax. Dude. I just don’t know how I feel about it yet. I’m fuzzy headed and I know I say things that totally don’t make sense, but in my head I know they make sense. I also can’t even drink diet sodas anymore and that makes me sad. Also, I know I told you this in a tweet, but it jacks with birth control. So, you know, be careful and stuff. But if you aren’t? MORE PENNYS!!
    3. Tumors are THE WORST. And I don’t think you are alone in thiking everything bad that you have is caused by a tumor. Any time I smell something weird, or get dizzy, I automatically think “Oh well, I have a tumor and I’m dying.” I hope the cancer box didn’t give you a tumor. I also hope that thing with your eyeballs is not dangerous. Just reading about an eye doctor visit made my eyes water. There is a REASON I went 4 years without going to the eye doctor.
    4. Strep throat does not fuck around. At least with a diagnosis, you can get antibiotics, and that means you should start feeling better almost right away. Take care of yourself.

    TJ Reply:

    I’m putting wallet sizes in the thank you notes for Penny’s birthday gifts! Watch the mail for your note of effusive thanks for the wagon which she LOVES THE SHIT OUT OF even though we have only rolled her back and forth in the driveway so far.

    MegglesP Reply:

    I would think you could just roll her around in the house and it would be just as exciting. I loved my wagon as a kid. I’m so glad she likes hers!

  5. Life of a Doctor's Wife

    Oh dear. Oh dear. This is all TOO MUCH. And yet you STILL made me laugh about it. (Especially this: I want you to know that it bothers me that I just ended two sentences in a row with the same word, but I just sat my kid in the middle of the floor with a whole cheeseburger and some french fries so while normally anal about such things, it’s a bit low on my give a damn chart at the moment. Just want you to know that I know.)

    But you asked an important question, one that I have had to deal with quite recently, so I have Opinions.

    I think you should only have to inform relatives of your health siatuaion if there is a reasonable chance that you could die. Which sounds kind of horrible and also DUH and also “well, you could die crossing the STREET.” But what I mean is, if you get diagnosed with something like cancer. Or if you have to have anesthesia. Even if the anesthesia is for something stupid and non-life-threatening. But in general, I think it’s best for all parties to deal with the I-already-got-an-MRI-and-everything-is-fine anger/petulance than to deal with the oh-my-god-my-poor-sweet-cousin/aunt/daughter/grandchild-MAY-have-something-terrible-wrong-with-her fear and worrying and reassurances.

    (I am very sorry you and Penny are dealing with all this health stuff. It really sucks.)

    (Penny is still unrelentingly adorable.)

  6. Mama Bub

    All of those words and I keep coming back to, “Okay, remember when I was in the hospital and you were a total jerk about it?”

    All I can think is: What did we DO?

    Also, my mother in law wants updates after every dental appointment, and if Benjamin misses a day of school because he’s sick, she will call me and ask why I didn’t call to tell her, and why I didn’t call later to update her. Personally, I like LoaDW’s rule of telling them if you might die. Unless you WANT to tell them. Then there are no rules.

    drhoctor2 Reply:

    We expected her to update…tho not really…sorta ….

  7. Swistle

    A tumor OR a vision-threatening Topamax side effect!

    It’s hard to decide exactly where the medical-sharing line should be. And I don’t have hassle-y/call-y family, which is going to skew my perspective on such things in a direction that might be the exact opposite of the direction that would apply in someone else’s family. But if I found out afterward that someone in my family had had a mid/upper-grade medical issue (certainly anything requiring hospitalization or long-term medication, or the kind of health state a doctor might want to know if I were related to; certainly not strep or colds) and hadn’t told me, I would interpret that as meaning they didn’t love me and wished I’d sever our family bond legally and get it over with.

    I think in this case (SINCE YOU DID ASK), I’d say that if members of your family have made it clear that they would really like to be kept updated, the decision isn’t as much about obligations re medical states, it’s more about whether you want to send the message it sends when you know what someone important to you really wants and you choose not to give it to them. Which in many cases is completely justified, especially in a case where you’ve communicated clearly to THEM that you DON’T want to share medical information and/or DON’T want to be fussed over medically, and they’ve ignored THOSE wishes.

    Isn’t that helpful? But my answer is that in this case it sounds like it would be nice to find a place in between “doing it a way that only makes you happy” and “doing it a way that only makes them happy.” And maybe spelling that out for them, so they know the score and don’t think it Means Something when you don’t tell them everything.

  8. Natalie

    Unfortunately, both hospital admissions and anything requiring cutting (like outpatient surgery) require notification of parental units. Otherwise, somebody like my husband is bound to put on Facebook “thinking of my poor wife recovering at home alone” and said parental units then FREAK OUT.
    So instead if waiting until it’s all over, you get to discuss it on their timeline.
    Sorry you’re going through all this. Hoping for the best fit you and Penny. Also, I read “violent hooligan” as “velvet hooligan” which I thought was fascinating.

  9. Kara

    Oh, so you’re saying as a 33 year old woman, I don’t need to call my Mom whenever I or my kids so much as get a case of the sniffles? Just because she resides almost 2700 miles away from us? That’s just foolish talking.

    And, in the last picture, Penny is totally giving you the stink eye!

  10. Denae @ New Mom Adventure

    Penny is so cute it hurts my eyes. Pictures were perfect. Of course you have no obligation to tell family anything other than you are dying in a one month to live way. My uncle just surprised my dad with that one. I dont think my grandpa knows but they dont really talk to that’s the exception in the you have to inform family rule. Oh and you have to tell your parents if your spouse dies or you decide to ditch/divorce them. However you typically dont worry about those details till you have been married for awhile and its only after legal documents or proof are furnished. Wishing doesnt count.

    Also headache could be related to eye issue? Just saying. You probably know that. Dont bother listening to me.

  11. Erin

    So you’ve made close, personal friends with your medical professionals, right?

    When I was slightly older than Penny, I had surgery on my kidneys and have some vague memories of the experience. My takeaway from the experience was a)being in a plastic box (I think for some sort of isolation?) with lots of stuffed animals, and b)the hospital Spagettios were gross. Apparently, I also tried to talk my grandpa into taking my iv for me, so you can look forward to getting some stories you can tell at all of Penny’s future significant life events.

    I also live a long way away from all my family, and have developed a system for dealing with sharing medical news. If it’s a routine medical appointment, Mom gets told during the next normal phone call. So if I go to the doctor for a sinus infection on a Friday, I’ll tell her about it during our regular phone call on Sunday. If it’s a more specialized appointment, I’ll let her know prior to the appointment and then call later the same day as the appointment. So if I’m having allergy testing, I’ll let her know Sunday, go to the appointment on Wednesday, and call her Wednesday afternoon. I find this works for me, because my mom already worries about me living alone 900 miles away and working in emergency management. She already knows I’m going to have to go to the doctor for some weird medical stuff, so keeping her in the loop makes her feel better and worry less. Plus, it has resulted in some care packages in the past.

  12. Carrie (in MN)

    I *totally* get what you’re saying about the fact that your family can’t do anything about it and you’re saving them worry, but I’ll give you my perspective from the other side of this: my mother didn’t want to worry my brother and I when she was having very serious health issues that resulted in hospitalization. Fortunately my dad overrode her. When we found out she didn’t want him to call we scolded her because now we have to worry that she won’t always tell us what’s happening and that makes us worry.

    Penny is still the cutest baby ever! Thanks for posting all those pictures.

  13. Suzanne

    My mother stalks my Twitter feed, which eliminates my need to inform her of medical situations – since if I am trapped in a hospital bed I am probably updated the internet with thrilling pictures of my IV and lunch – but is also inconvenient in about a zillion other ways. SWEAR WORDS!

    The pictures of Penny are so fantastic I scrolled through to see them all before going back and reading all the updates and now I feel like an asshole. I’m sorry.

  14. Josefina

    It sounds like people have very different ideas about informing parents about medical conditions than my husband and I do. I’m pretty sure my husband may have failed to inform his parents he was having surgery. I’m also pretty sure no one batted an eye. I have a medical condition I feel sure a family member would want to know about and would expect that I’d mention, but I refuse to divulge that information for reasons I consider completely valid. If my medical condition led to cancer, I would seriously consider not telling until I had steeled myself and was ready. This is because I am absolutely certain things would be said and done by this family member that would make the experience far more trying that it is on its own, possibly to the point of soul-crushingness. As I read through the comments, it sounds like this is an unpopular stance, but there it is.

  15. kirsten

    Ah, they found the papilledema in me at twelve and had me panicking about a tumor. The specialist looked in my eyes and did one test. “That’s just how you are made.” Panic for no reason.

  16. Carrie

    Those pictures of Penny are so adorable! I just love the princess outfits! What a total little cutie.

    I’m sorry you are having so many health issues. That just sucks. I don’t think you really have any obligation to tell your family anything if you know it will annoy you when they want updates. You’re a grown, married woman.

    I don’t want to say this. Please don’t hate me. I can’t help myself and I know this is not helpful at all, but I can’t stop myself. My friend was having vertigo and migraines for months. She couldn’t get out of bed most days. She had all kinds of scans and appointments and stuff. Her doctor finally give her a list of dietary changes to try. She stopped eating chocolate and all her problems went away. It was totally crazy.

  17. Kimberly Jones

    Have you looked into Pseudotumor Cerebri?
    http://www.mayoclinic.com/health/pseudotumor-cerebri/DS00851/DSECTION=symptoms

    I had it – not a huge deal.

    Natalie Reply:

    WOW – a very interesting article about something I never heard of or imagined. Thanks for sharing.

    jen Reply:

    Hey! I was just going to suggest this (pseudo-tumour cerebri)! I had this as well – in my case it was pregnancy induced (it appeared suddenly and severely at 6 months pregnant), which is rare. I required an emergency spinal tap to drain fluid so the pressure in my head (and damage to my optic nerve) would be alleviated, which is not a fun procedure at the best of times, let alone when very pregnant. Usually it is not that severe, though, and can be managed with medication. Mine went away immediately after giving birth, luckily.

    Anyway, check it out, maybe?

  18. Miss Grace

    Gabriel had surgery when he was 5mos old and it was necessary and the right thing to do but MY GOD it was terrifying. And bad. I mean, I’m glad we did it and I’m glad we did it then and medically necessary but yeah.
    I’m sorry.

  19. Laura

    I’m a lurker, and I’m coming out of lurkdom to say GET BETTER and COME BACK because the intrwebs isn’t fabulous without you.

  20. Delicia

    Love the pics!!

    I’m so sorry you are all going through so much medical-related crap, it really sucks and it’s not FAIR and you should just be able to enjoy your adorable baby and silly dogs and loving husband and UGH.

    Thank you for trusting us with all this information, I promise not to pester for any future updates. I hope everything works out for you and Penny and your health issues.

    As for the family-informing issue.. eh that’s a tough one. Mr. Del recently had major surgery, and we only told his parents, and our kids. Then his mom blabbed it to HER mom and of COURSE his Grandma was calling all that day wanting updates, but she’s really old and a sweetheart so I forgave her and made his mom deal with her. Basically I’m saying I’ve found it’s good to appoint some other relative to be the UPDATER, and all the info can be funneled through them and then people can pester THEM instead of YOU. As to *when* to inform.. I tend to only inform long distance people if 1. an ambulance was involved 2. any procedure that requires sedation (dentist doesn’t count) 3. admittance to the hospital

  21. Andrea

    Ditto what everyone has said about how awesomely great Penny is and damn enough with the health stuff. Feel better quickly!

    As for telling parents. I’m a 37-year-old single woman who has lived at least 1000 miles from home pretty much since I was 18. Generally, I feel no obligation. My mother, however, is a nurse so I’ll pretty much let her know so i can get her opinion. Now admittedly, she’s a neonatal nurse and loves to say: Andrea, I could have helped you 36 years ago… But she still gives an opinion and makes me feel better.

    Whatever you decide for telling is the right thing for you and that’s all that matters!

  22. Jeanette

    As the mother of two adult children I can tell you that I appreciate when they tell me their medical issues, even though it can cause me to worry! To have found out after the fact would hurt my feelings I think. Although I try not to bug them about anything! Also Penny is seriously cute!

  23. Rosa

    I totally would’ve felt sorry for you IF you hadn’t kept distracting me with pictures of your ridiculously cute kid!!

    Also bear with me, but I just have to pretend I have the solution to EVERYTHING for a moment… It’s just that my mom is really into bio-organic-orthomolecular-fancy-greek-words-diets and she raised me with the belief that many problems can be solved with the right diet. You could try cutting salt / processed food / sugar / whatever out of your diet and see if it helps. A more difficult method that my mom used when she had a problem was she ate nothing but really neutral foods (rice and stuff) for 1 or 2 weeks and then she added more and more fruits and vegetables and eventually processed foods to her diet (1 every 3 / 4 days) to see how it affected her body. Turns out she can’t handle spinach, pork and chocolate. Problem solved.

    Also: I had surgery at Penny’s age and my parents were ABSOLUTELY TERRIFIED. Of course your doctor is competent and everyone tries their best but your instinct tells you she’s so small and the doctor is going to hurt her and YOU HAVE TO PROTECT HER. That’s all normal. And horrible. So I wish you all the best.

    I hope you both feel better soon!

    Natalie Reply:

    This sounds like a real PITA, but makes a lot of sense to me. When we first got our dog, I blamed her crappy food for every minor thing, and once I switched her to something better, a lot of things did get better. Although she still sometimes has eye water that she wipes on me. Gross.
    Anyway, good story.

    Rosa Reply:

    Thanks Natalie :)

    By the way, I told a friend about TJ’s blog, and she mentioned her grandmother used to have migraines until she found out she only had it when she drank milk. She stopped drinking milk and now has no more migraines.

    Natalie Reply:

    Yeah, I used to get them too, and I started keeping a food journal. Weird thing is, I never exactly identified what my triggers were, but coincidentally the migraines seemed to go away soon after I started journaling. I think it was really birth control related. Lowest dose possible is key. Or get an IUD.

  24. Tessie

    A couple of years ago I got a tooth/jaw/neck abscess from a wisdom tooth removal and ended up in the hospital for about a week (in Texas). I didn’t tell my parents (in Minnesota) until I was about to go home. There was nothing they could do about it, except worry and remind themselves about the horror of me living so far away, so I didn’t see the point. Then again, we don’t tend to talk more than once a week or so anyway, so maybe that was a factor? I think if I had talked to them in the meantime and not MENTIONED it, that might be different.

  25. Holly

    Not being married and being 290mi away from my closest relatives, I tend to be a little more cautious than others about informing of maladies. I wouldn’t call about a cold/flu/run-of-the-mill sprain or anything, but when I had heart arrhythmia last June, I called and let them know I was headed to the ER. Anything where they might end up calling an emergency contact, I’d prefer to give relatives a heads-up so they don’t end up with similarly irregular heartbeats.

    I have no practical advice for you, other than to say that I’ve got you and Penny in my thoughts. You’re clearly earning karma points.

    Here’s a link to a website that takes twitter and puts it in sonnets, complete with iambic pentameter: http://pentametron.com/

    Enjoy :)

  26. -R-

    I think you have to tell your mom every time you are hospitalized. Or if you go to the ER and get treated and go home, you can tell your mom after you get home. I would be pissed if my mom was in the hospital but didn’t tell me, which has happened before. Or if Grown-Up Ren or Ree went to the hospital and didn’t tell me, I would kick their behinds.

    Get better soon, TJ! Geez, Louise.

  27. Lawyerish

    What I want to know is how you can be so damn funny while being put through the wringer with all this madness?

    The Penny pictures are INSANELY AWESOME and I am having trouble remembering what I was going to say after having looked at them.

  28. Ginger

    How you get anything done with that bundle of cute around, I will never know.

    As to the medical thing, I’ve been thinking about this a lot. I’ve been on the other side (my mom in the hospital for 5 days and not telling me, my FIL in the hospital for months & not telling us, both drastic, but they do color my opinions), and I think I’ve decided that if there is an overnight hospital stay, or visits to a specialist, it’s kind to let family know about that. Even though they can’t do anything, it can feel really crappy to know that something “serious” (even if it wasn’t, in the end) was going on without being told. It makes the distance feel that much bigger and more permanent.

  29. Rebecca

    I’m so sorry you’re going through all that you are and amazed by the fact that you still entertain us and make us laugh.

    Now to weigh in–because in my family everyone only ever cared about was themselves, causing drama, and how they could be in the center of attention I have no notion of ever contacting my parents for anything. Got a new job–they didn’t know for at least a month. Bought a house–they didn’t see it until months after we had moved in (this time, however, they did know in advance they just didn’t show any interest). We recently had a pet of ours die–which has crushed me–they know and they have said nothing. So my thought is it’s your life, not theirs. If it’s nothing major, then don’t tell them. Of course, you get on better with your family so you might want to just hold off until everything is fine again or wait until someone specifically asks you about it. That way you aren’t lying, but you’re also not volunteering information you’d rather not give in the first place.

    Natalie Reply:

    Sorry your parents are jerks, but more sorry your pet died :( I know how hard that is. My family was extremely sympathetic when it happened to us, so I can’t imagine how much harder it would be for people to know and appear not to care. Boo.

  30. Rhonda

    My daughter had the kidney reflux thing as a little one too. We were in urgent care with a 5 week old who was spiking out a 103 fever. Good stuff. Scary, I’ll tell you what. But you already know all about it. K’s was much less than Penny, I’m sure. She was graded a 2 on the level of severity. She had to take low dose of antibiotics until she was 9 months old. She’s now a spunky 8 almost nine year old who’s about to go to a couple of summer camps.

    I know its scary and sucks. Penny will be in good hands and she’ll overcome it, I promise. Hang in there. I enjoy your blog.

    DFTBA

  31. Heather

    My daughter had the surgery at 13 months. It was scary for me, but it was the best thing ever for her. Other than a rough 24 hours after surgery, it was smooth sailing. She is 4 and no bladder/kidney issues and a tiny scar that reminds us of how special she is!

  32. Miranda

    I’m getting caught up on some of my blog reading so I’m just now reading what’s been going on with you guys the last couple of months. Over a month later there isn’t much I can offer aside from, damn. Life sucks balls sometimes. Sorry about that.

    I see that someone already mentioned Pseudotumor Cerebri. I was diagnosed with it New Years Fucking Eve 2010 and pretty much have it under control now. Well, I did through my pregnancy but haven’t gone in for my check ups like I’m supposed to because me and my hospital aren’t exactly on speaking terms, but ANYWAY, if you have questions or anything at all you know where to find me. I know I would have found it helpful to have someone to talk to about it when I was figuring out what was wrong with me when so many doctors didn’t have an explanation.

    PS- Penny is criminally cute.

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